Blog
Alliance Member Epilepsy Action campaigning for change
Alliance member Epilepsy Action shows how they are supporting the Alliance’s goals and placing the experiences of people with living with a neurological condition front and centre as they campaign for change. Daniel Jennings, Senior Policy and Campaigns Officer and Claudia Christie, Media Officer at Epilepsy Action, write: Since Personal Independence Payments (PIP) were introduced […]
Things have changed for the better. Is that the case for your neurological condition?
Sarah Joiner, Vice Chair of the MS Trust and member of The Neurological Alliance #MyNeuroSurvey Steering Group, writes: I was diagnosed with multiple sclerosis in 1981. Back then I received care from a consultant and a small medical team. Hours of waiting all morning, an examination to see how the condition had progressed, and some […]
We have never needed patient advocacy and citizen advocacy more than we need it now
Caroline Clarke, CEO at the Royal Free London NHS Foundation Trust, writes: Thank you for giving me the opportunity to speak at your AGM and to restate what I said then to your members in this blog. I am the CEO at the Royal Free London NHS Foundation Trust, a group of hospitals in North […]
Celebrating achievements across the neuro community
As we publish our annual report, we reflect on the Alliance’s activities in the last financial year (July 2020 – June 2021), celebrate achievements from across the neurological community, and look to the future.
Reasons to be a radiator
Georgina Carr, Chief Executive, outlines her hopes for the new year: Like many of us, I’ve found this year to be incredibly difficult. The impacts of the Covid-19 pandemic seem to be relentless. People, communities and services are incredibly resilient, but have been tested as never before. At our AGM last week, our wonderful speaker, […]
Your experiences matter: why My Neuro Survey is so important
Sam Mountney, Policy & External Affairs Manager at The Neurological Alliance, shares his thoughts: There is a real opportunity to bring about much-needed improvements to the care and support available to people with neurological conditions, but we can’t do it without you. We need your help to know what is happening on the ground in […]
