Publications

A rapid literature review carried out by Patient Experience Library in May 2024 and commissioned by the Neurological Alliance as part of preparations for the 2024 iteration of the My Neuro Survey. The review was undertaken during a four week period in May 2024 and supports the Neurological Alliance in deepening our understanding of how […]

Together with over 35 member organisations, The Neurological Alliance has written to the new Secretary of State for Health and Social Care, Victoria Atkins, calling for action to improve services and support for the one in six of us with a neurological condition. Read it here.

This epilepsy resource navigator tool is designed for commissioners, providers and professionals working with the epilepsy population in England. The tool identifies and directs you to the best available resources to commission, design and improve services for people with epilepsy, their families and carers. The information and resources in the tool can help local systems […]

A focused literature review by Micha Vidot, Medical School, St. George’s University of London, London, UK, Dr James W Mitchell, MBChB, Institute of Systems, Molecular and Integrative Biology, University of Liverpool, Liverpool, UK, Dr Kit Wu, Consultant Neurologist, Kings College Hospital, London, UK, Dr Arani Nitkunan, Neurology department, Croydon University Hospital, London, UK and Georgina […]

Find out more about the results of the first ever children and Young People’s My Neuro Survey, carried out in 2021/22.

Analysis of My Neuro Survey responses shows that people affected by neurological conditions and who identify as gay, lesbian, bisexual or trans often report worse experiences of care copared with those who identify as cisgender, including poor access to support for their mental wellbeing. Get the briefing.