News
New digital tool to encourage people with neurological conditions to share their experiences
Yesterday the Brain and Spine Foundation and the Neurological Alliance launched a new mobile app and website to support people with neurological conditions to more easily share their experiences of care. The app, ‘NeuroLifeNow’ has been designed in response to service disruptions in neurological treatment, care and support exacerbated by Covid-19. The pilot, which launched […]
NICE Quality Standard on suspected neurological conditions published
Today the National Institute for Health and Care Excellence (NICE) has published its ‘Suspected neurological conditions: recognition and referral‘ Quality Standard. The Standard is intended to support more effective and timely diagnosis of people with possible neurological conditions, and contain six areas for specific improvement and information about how these may be measured. The Standards […]
Parliamentarians hear from people with neurological conditions about how they have been impacted during the pandemic
This month, Parliamentarians from five All Party Parliamentary Groups (APPGs) on different neurological conditions came together to hear about how services for people with neurological conditions have been impacted during COVID-19, with a particular focus on rehabilitation. The session was jointly coordinated by the APPG secretariats, Parkinson’s UK, MS Society, SUDEP Action, MND Association, Epilepsy […]
People with neurological conditions have missed out on vital treatment and support
Today the Neurological Alliance launch the results of their recent survey of more than 1,600 people with neurological conditions, with over 7 in 10 respondents reporting delays to their medical appointments as a result of COVID-19. This means people with long-term neurological conditions could be missing out on the vital assessments and treatment that help them to […]
UK Framework for Rare Diseases published
The UK Framework for Rare Diseases, published on 09 January, outlines the principles behind how people with a rare conditions will be diagnosed, treated and cared for in years to come. It provides the backdrop for how services need to improve for rare disease patients and their families/carers. Unusually for health, the Framework applies across all […]
New NICE neurological conditions guideline: a missed opportunity
The National Institute for Health and Care Excellence (NICE) has published a new guideline on suspected neurological conditions: recognition and referral. The Neurological Alliance is disappointed with the result. The guideline is intended to help non-specialist healthcare professionals, such as GPs, working in primary care to identify people who should be referred on for specialist investigation […]
