News

August 31, 2022

Our response to the Health and Social Care Committee Inquiry on ICS accountability and autonomy

The Health and Social Care Committee launched an inquiry into how Integrated Care Systems (ICSs) will deliver joined up health and care services to meet the needs of their local populations. The inquiry also considered how ICSs could and should balance increased flexibility over budgets and commissioning with the need for clear accountability. We responded […]
NeuroLifeNow app - Help Shape The Future of Neural Care
August 17, 2022

Expanding data and reaching seldom-heard voices: help take NeuroLifeNow to the next level

The Brain and Spine Foundation and The Neurological Alliance have been running the NeuroLifeNow app together for the past year. It’s a platform to support people with neurological conditions to share their stories and gather real-time data around their experience of care, treatment, support and daily living. Neurological Alliance Trustee and Brain and Spine Foundation […]
June 1, 2022

NHS England and NHS Improvement publish roadmap for delegation of specialised services

NHS England and NHS Improvement (NHSE/I) have set out their plans to delegate responsibility for a range of services to an ‘Integrated Care System’ (ICS) level. This means that many services that are currently planned and commissioned at a national level (i.e. specialised) will now be planned and commissioned at a regional level. The ‘Roadmap […]
May 31, 2022

NHS England and NHS Improvement to appoint new National Clinical Directors for neuroscience

NHS England and NHS Improvement (NHSE/I) have confirmed they will appoint new National Clinical Directors (NCDs) for neurology, and neurosurgery and spinal surgery. A long time coming The roles are an important step in tackling the significant unwarranted variation in treatment, care and support for the 1 in 6 living with a neurological condition in […]
A group of people discussing mental health. The man in the centre has a serious expression while the others look supportive.
April 13, 2022

Improving mental health: join us in responding to the Government’s call for evidence

We welcome the Government’s call for evidence to develop a 10 year plan to improve mental health for everyone across the UK. Help make sure the neurological community is represented and join us in submitting a response. We know that living with a neurological condition, or caring for someone who does, can affect every part […]
February 28, 2022

England Rare Conditions Action Plan falls short on mental health

The Department of Health and Social Care have published the first Rare Diseases Action Plan for England, coinciding with Rare Disease Day on Monday 28 February 2022. The plan sets out the Government’s plans to improve the speed of diagnosis, access to genetic testing and how they assess access to medicines for rare conditions. The […]