New epilepsy service tool launched

19/06/2023

The Neurological Alliance has today launched a new tool to help improve epilepsy services. The tool, developed in collaboration with epilepsy organisations, people affected by epilepsy and healthcare professionals, aims to be a ‘one stop shop’ for anyone interested in improving epilepsy care to find the evidence they need.

Helping to make the case for change

The ‘Epilepsy Resource Navigation Tool’ includes resources to improve treatment, care and support for people affected by epilepsy. It follows the publication of a range of evidence and guidelines to support the improvement of care, such as the RightCare epilepsy toolkit, NICE guidance, the National Audit of Seizure Management in Hospitals (NASH) and Epilepsy12 audit. Feedback from the epilepsy community suggested it was often difficult find the right resources to make the case for improvements to services.

To develop the tool, the Neurological Alliance interviewed people affected by epilepsy, commissioners of health services, healthcare professionals and epilepsy organisations, to understand what evidence would be most helpful to them when trying to improve services.

The tool has been published ahead of the NICE Quality Standard on epilepsies in children, young people and adults, which is undergoing review.

The first in a series

The tool is the first in a series of resources to help make the case for change, and further tools will be developed across a range of neurological conditions.

You can view the tool here.